About

I’m Adam. I’m a software developer and a dad. Our daughter has Phelan-McDermid Syndrome, a rare genetic condition, and this is where I write about our life with her.

This is a personal blog. It isn’t a company’s, it doesn’t sell anything, and it isn’t medical, legal or financial advice. When I write about a benefits program or a legal document, I’m writing about what we did. Check your own situation with someone qualified.

Every post is dated. What’s true about a child at six may not be true at fourteen, so please read older posts as a record of when they were written.